Travelling with Parkinson’s. An introductory guide.

Traveling with Parkinson’s requires a shift in mindset: A shift from reacting to events to a mentality that is fixed on preparation, planning and management.

Medical Disclaimer

The information provided in this article is for informational purposes only and does not replace professional medical advice. Before planning a trip or making any changes to the management of Parkinson’s disease, it is always recommended to consult your physician or neurologist.

Preparing to leave on a trip or Holiday

In addition to checking you have all documents and items like ticket, passport, money, keys and visa requirements (depending on destination). You will need to prepare a Carry a “Travel Packet” with conclusions from your last Neurological visit or a letter from your physician, either paper should give you an acurate list of generic names for your meds (brand names vary by country), and any of your original prescriptions.

Technically if you are going on Holiday, you should have a backup pack in your spouse’s bag in case of lost luggage.

The same can be applied to medications you should take one pack with enough to cover you completely and a few days extra just in case of delays and a second pack in a Different case to act as back up.

YOU DO NOT WANT TO BE IN A DISTANT LOCATION HAVING LOST YOU MEDICINES.

Travel by plane

Travelling can be stressful in itself which will increase symptoms so do not be afraid to ask for assistance including wheal chair assistance (even if you do not usually use one) as this will make such aspects as security much easier and faster.

There is the aspect of time zones. You should ignore the clock and adjust to calculating the time elapsed between doses. This can be set up on a cell phone easily.

If on a long journey, keep in mind exercise space is limited, look on you tube for exercises in sitting position or in small spaces. Or just apply 5 mins every 55 mins of our PWR moves in sitting or standing.

Travel by train 

Train travel is often the most Parkinson’s-friendly way to move between cities

In 2026, European rail networks (Eurostar, Trenitalia, SNCF, DB) have highly coordinated assistance programs. You do not need to be a wheelchair user to access these; having Parkinson’s is a valid reason to request support for energy conservation.

Extra care should be taken getting on and off trains

Book seats as close to the doors and the accessible toilet as possible. This minimizes the distance you need to walk while the train is in motion, which can be tricky for balance.

Priority Seating: Even in Standard Class, most high-speed trains (like the Frecciarossa or TGV) have “Priority” or “Accessible” seats with extra legroom and fewer obstacles.

How to choose the right Hotel

Proximity is Priority: Book hotels within a short walk or are easily accessible to your primary interests. Make sure the Hotel is not spread over a large area. Make sure it is wheelchair friendly if needed and asked for a less abled room

Bathroom Safety: Specifically request rooms with grab bars and walk-in showers. Even if you don’t use them at home, travel fatigue can affect balance.

Lift or ground floor access are important

If you are on your own ask for wake up calls and ask reception for any assistance available (often there is a doctor on call in area who may be required.

Quick travel checklist

Item and action:

• Medication
  Pack 20% more than you need for the duration and take a SEPARATE back up supply
• Drink a lot even more than usual
  Carry a refillable bottle; dehydration mimics and worsens PD symptoms.
• Clothing
  Wear “button-free” clothing and shoes with elastic laces for ease during security and dressing.
• Insurance
  Ensure your policy explicitly covers pre-existing Parkinson’s for 2026 travel.

Practicable advice when travelling with Parkinson’s

Carry a “Travel Packet” with conclusions from your last Neurological visit or a letter from your physician, either paper should give you an acurate list of generic names for your meds (brand names vary by country), and any of your original prescriptions.

Technically if you are going on Holiday, you should have a backup pack in your spouse’s bag in case of lost luggage.

The same can be applied to medications you should take one pack with enough to cover you completely and a few days extra just in case of delays and a second pack in a Different case to act as back up YOU DO NOT WANT TO BE IN A DISTANT LOCATION HAVING LOST YOU MEDICINES.

There is the aspect of time zones. You should ignore the clock and adjust to calculating the time elapsed between doses. This can be set up on a cell phone easily.

Naturally you should allow enough time to drop your bags (Airport) and get through any security or document checks, this will ease stress.

Travelling can be stressful in itself which will increase symptoms so do not be afraid to ask for assistance including wheal chair assistance (even if you do not usually use one) as this will make such aspects as security much easier and faster.

Travelling alone or in company?

This depends on your age, years of Parkinson’s and mental agility

• You can expect to be able to travel and stay over on your own for many, many years. Cognative factors and strength are essential. Balance when carrying a bag is essential.
• If you suffer from balance, strength or cognative factors you MUST consider always travelling with a companion.

FAQ Parkinson’s Travel

Can I carry medicines on the aircraft?

Yes, as long as they are legal in the country of destination, and 99% of Parkinson’s medications are accepted around the world. When going through security, you may be asked to show a neurologist’s or doctor’s letter. Inform assistance staff if you cannot use infrared scanning, especially if you have had a DBS implanted.

Do I have the right to assistance?

Generally yes, at airports and train stations. This normally includes wheelchair assistance and even boarding the aircraft using a lift. These services are free of charge in most airports and many train stations. Assistance must be booked at the time of travel booking.

Which is easier: train or air travel?

For obvious reasons, train travel is often easier. You can get off more easily if you are not feeling well, bathrooms are usually larger, and most importantly, it is easier to exercise thanks to the ability to walk up and down the train.

How to handle long distance travel?

Plan, plan, plan for every eventuality. Work out in advance when and where you can exercise. If you have the budget, consider flying business class or economy plus. Allow yourself at least one day to recover from the flight before starting any appointments. Remember that stress and lack of exercise are your main enemies.